Wednesday, February 16, 2011

Today

We are trying to get into a routine... and ever evolving, crazy routine. Part of the routine is getting Owen to the hospital everyday. Start acclimating him to the fact that we are here for a long while. I won't lie, he's having a tough time, which is normal. I'm told by the fantastic child life program that this is normal, and he will get used to it. We've set up a drawer in our room just for Owen, and plan on putting fun little things in it every day.

We also have a pad to play on the floor with Henry. Some floor time is always fun. We've acquired three balloons: an octopus, a caterpillar and a turtle. Owen wore all three today. I'm surprised he didn't float away!
Upset Owen... octopus wouldn't stay behind him. When he got upset, we started a stroller ride to find lunch. All was better with some fruit and a grilled cheese sandwich.
The steroids are making Henry so BIG! Look how easily he can pick up that car!
We are on day five of chemo. As this is just high dose steroids, he is still pretty happy most the time. The "big guns" start on Saturday. I'm planning on a sick, tired, pukey baby real soon...
Good news: his blood counts are coming down nicely. This makes the oncologists, and us, very happy...
Bad news: we are only on day five of a 365 day journey.

3 comments:

Susan said...

Owen looks so grown up with his haircut! Lovely photos of Henry. I hope the routine gets more familiar for all.

Carol Alice said...

The well written commentary and captivating photos of the beautiful Family of Four certainly inspire hope and gratitude in those of us who follow the saga of the healing of Henry. I am so impressed with your ability to jump right into doing whatever needs to be done to keep the family intact and butter side up. Your courage is spectacular to spectators, but the new normal for you. Bless you all.
Carol

rikiritter said...

The good news is 5 days down, only 360 to go! Sending healing energy and love to you all.