After spending most of our summer thus far, and really most of Henry's life, with Henry sick... we try to live each good day fully. Even if it's for an hour, we try to have fun. Enjoy the good days, because they are often followed by three hours of screaming, steroidal grumpy Henry. We have to be careful on what we do, because Henry does have a weak immune system... no crowds, no zoos... but we do what we can, and Owen has taken the responsibility of carrying the alcohol hand sanitizer.
Yesterday, we fed the ducks
Henry is on TPN, we are literally leashed together. Where he goes, I go.
Today, we had four hours off TPN, so we jumped at the chance to go to the park. Henry is still pretty weak, two months of being sick will do that... but he sure does play as much as he can...
Henry LOVED swinging.
Owen loved the slides.
Owen is such a good big brother.
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